CA25128 - Implementation of advanced management strategies in chronic kidney disease: towards kidney health (KidneyHealth)

Chronic Kidney Disease (CKD) affects up to 11% of the European population, resulting in estimated total annual health costs exceeding €140 billion. Tools developed throughout decades of research have the potential to improve CKD management, nevertheless their implementation is hindered by a lack of communication among stakeholders.

In response to the growing CKD burden and the need for coordinated efforts, the Action will establish a pan-European, multi-disciplinary network involving scientists, physicians, payers (e.g. health insurers), health economy experts, regulators, policy makers, and patient representatives. It will coordinate dialogue and knowledge exchange to overcome communication gaps and establish a roadmap for advancing CKD management based on precision medicine.  

The Action will harmonise bio-sample and data collection and handling, integrate existing resources to support clinical trials, prioritise tools for implementation, to deliver a pipeline for their transfer into healthcare systems considering the legal, regulatory and health economic framework. The Action will also raise public awareness and promote education on prevention and early diagnosis. The Action will coordinate its activities through Working Groups, Training Schools/ Workshops and Short-Term Scientific Missions.

The strong inclusive and educational focus is reflected in a broad network, including participants from Inclusiveness Target Countries, and numerous Young Researchers and Innovators. The network will continue to expand during the Action. The Action is fully aligned with the COST mission and will provide the urgently needed communication platform to translate scientific findings into benefits for patients and society, while integrating available resources to strengthen future collaborative research.