HELIOS Training School on Ethics, Gender, Regulation and the Use of Data will take place in Bari, Italy on 1-3 July 2026.
This training school will focus on key ethical, legal, and societal aspects of research in haemoglobinopathies and related fields. The event is organised within the HELIOS network, with Fondazione per la Ricerca Farmacologica Gianni Benzi Onlus as the local organiser.
The programme will provide participants with practical insights into responsible research practices, regulatory frameworks, and inclusive approaches to data use in biomedical research.
Participants will gain knowledge and practical understanding of:
- EU data protection provisions, including GDPR and data privacy
- Ethical considerations in genetic research and artificial intelligence
- Regulatory frameworks governing biomedical research and data use
- Integrating sex, gender, and inclusiveness in research and institutional practices
- Responsible, transparent, and equitable approaches to research and data use
Who should apply
The training school is open to researchers, clinicians, and professionals working in haemoglobinopathies and related fields who are interested in strengthening their understanding of ethical, regulatory, and inclusiveness aspects of research.
Participants may choose to become members of HELIOS if they wish to be eligible for reimbursement through the network.
Application information
Deadline 29 March 2026 https://0lyz0gsa.forms.app/expression-interest-ethics-gender-regulation-and-use-data-training-school
More information, check this link: Ethics, Gender, Regulation and Use of Data Training School | Bari, Italy | 1-3 July | Apply now! – Helios
Contact: Dr Cornelis Harteveld – c.l.harteveld@lumc.nl