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ISCH COST Action IS1303
Citizen's Health through public-private Initiatives: Public health, Market and Ethical perspectives (CHIP ME)

Descriptions are provided by the Actions directly via e-COST.

The falling cost of genome sequencing is making genetic information more easily accessible to the ordinary citizen. The proliferation of different actors in COST countries and beyond, engaging with the generation and interpretation of genetic data represents a tremendous opportunity but also a new challenge for society. The public health care system will increasingly be asked to provide interpretation and counselling relating to genetic information that has been generated privately and to satisfy the legitimate curiosity of participants in large-scale population genetic research. Existing ethical and regulatory frameworks may not be suitable to allow an efficient and ethical meeting of demand and supply of genetic knowledge and health, as well as a virtuous interaction between public and private actors. This Action aims to improve the state of the art by creating a community of researchers and stakeholders and linking existing initiatives which bring critical expertise in bioethics, social studies of science and technology, genetic technology, information and communication technology (ICT), stakeholder deliberation, and patient centred initiatives (PCI).


General Information*

Chair of the Action:

Dr Elia STUPKA (IT)

Vice Chair of the Action:

Dr Michele LOI (PT)

Science officer of the Action:

Dr Luule MIZERA

Administrative officer of the Action:

Mr Leo GUILFOYLE

Downloads*

Action Fact Sheet

Download AFS as .RTF

Memorandum of Understanding

Download MoU as PDF

Websites*

Domain website:

http://www.cost.eu/isch

* content provided by e-COST.
Data is synchronised once per night.

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Last updated: 28 May 2013 top of page

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